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[personal profile] ninanevermore
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I’m around a new group of people in a new workplace and this means one thing: keeping the whole “my body doesn’t make any insulin” thing under wraps for awhile. I usually wait 6 months, at least, before I let it slip out in casual conversation. It seems silly and the disease is not that big a deal to me, but experience has shown that I need to let people get to know and see me as a person before they hear about any disease. They need to get used to seeing me eat the same stuff they eat and do the same things they do so that when they learn about it I am "Nina, who happens to have diabetes" rather than "a diabetic whose name happens to be called Nina." At my last job, I brought it up after only a couple of months and lived to regret it.

In my department at Big Death, there was a culture of desserts like one I had never come across before. My boss, T., liked to buy everyone lunch and sometimes dinner when he was in town, and loved to insist that everyone have dessert when he did. In addition to this, Dixie, my coworker who would turn into my office nemesis, loved to bake and bring desserts in and serve up large slices of gooey sticky forbidden delights. In my first weeks on the job, my refusal to eat dessert quickly cast me as an outsider. I have never felt so uncomfortable about turning down offers for sweets in my life.

“Here you go, Sugar,” Dixie said one day about two weeks into my time at Big Death. She handed me a small paper plate overflowing with a slice of cake the side of my face. This was before she’d made up her mind that she hated me and stopped calling me “Sugar” (she pronounced it Shoog-ah).

I declined and said that I really didn’t eat sweets. She looked like I’m just told her that her kids were ugly and stupid.

After a pause where her sense of offence hung in the air between us like so much stale cigarette smoke, she said, “Neither do I, I just like making them,” she said. “At least try it.”

I asked for small piece, in that case.

She dropped the big piece on my desk where it landed with a soft thud. "Just throw away what you don’t eat." It was her signature dessert, called an Almond Joy Cake: a chocolate cake with coconuts, caramel, and almonds so sweet that it made your teeth hurt. I don’t like coconut flakes out of a bag (fresh coconut is a different matter), so I found it easy to eat a bite of the cake part while avoiding the icing and toppings, and then threw the rest away. I put some paper on top of it in my trash can so she couldn’t see how little I’d eaten. I was just figuring out that as far as Dixie was concerned to reject her cooking was reject her. She used to own a restaurant called "Sugar's Tea Room" and her identity was still wrapped up in food.

T., my boss, liked to buy rather than make desserts, but he looked wounded if I said no. In fact, he kept insisting (“Oh, come on! Pick something! Go ahead!”) that I would end up letting him buy me a slice of cheesecake or pie just to make him shut up. I felt too self conscious at that point to not order a dessert since the tone was being set that by not ordering something sweet I was ruining everyone else’s good time. I would take a few bites and then ask for a to-go container, saying it was wonderful but that I was just too full.

I came out of the NutraSweet closet, so to speak, with my two coworkers when T. was out of town told the three of us to go to lunch on his credit card to celebrate mine and Delbert’s birthdays, which fell a few weeks apart. This would be the only time I would ever go out to eat with just my two co-workers. In the almost 2 and a half years I was there they would eat together often but I was never again invited. By that point I was absolutely weary from having declined so many desserts and having everyone insist that I must, I really must have something since everyone else was.

After the meal, Delbert and Dixie announced that since this was a birthday celebration and T. was paying that we may as well all have dessert.

“I’m full. Y’all go ahead,” I said cheerfully.

“Oh, come on,” said Dixie, “T. is paying! Get yourself something!”

“I don’t eat sweets that much.”

“Nonsense! This is a special occasion! Get something!” It sounded like an order, and it was starting to get on my nerves. I reached in my purse for the pen I carry to inject insulin.

“I’ve had diabetes since I was a little kid,” I said, dialing up a dose on the pen to cover my lunch but not the mother-load of carbs that would come in a slice of cake, “I’ve gotten used to not eating sweets in that time and I don’t really like them that much. Y’all go ahead. Get two each and enjoy an extra one for me.” I stuck the needle of the pen into my thigh through my slacks.

Delbert just raised his eyebrows and shrugged. “All right,” he said. I never had any issues with Delbert. He’s smart, if a bit boring. For his personality to be any less dramatic than it is, he would have to be in a coma. Dixie, on the other hand, was another matter. Her body stiffened and her face hardened, as if my diabetes were somehow a personal insult against her and her baking hobby. “Well,” she said, “I guess you don’t need anything, then.”

“Nope!” I smiled brightly. I was doing my damnedest to be light and cheerful through this whole exchange. Dixie's face was like a stone when she looked at me. I still can't figure out exactly why she took this as such an affront.

They two of them ordered desert, but the conversation was more subdued after that. Dixie, who had been sitting on the fence about whether I was something she wanted around or not, apparently decided then and there that I was not. She acted like she had caught me in a lie, and viewed my revelation as proof that I couldn’t be trusted any further than I could be thrown. If I could hide something like diabetes, God only knows what other dreadful things were bound to surface about me.

Two years later, when Dixie was diagnosed with Type 2 diabetes, she suddenly sidled up to me and wanted to talk shop. I didn’t like Dixie by that point, but I was always tried to be friendly toward her. My theory is that taking the high road not only keeps you from rolling in the mud, it gives you a good vantage point to look down your nose at the person who takes the low road. I asked polite questions about her treatment and gave her some tips. Of course, when Dixie got diabetes everyone she met knew about it. It was something people could feel sorry for her about, and she could shake her head and tell people how hard it was to adjust to. I'll give her credit: it is not an easy adjustment. I made it years ago, but I remember that much.

Dixie’s reaction to my diabetes was by far the most extreme I’ve come across. Most people are subtler and kinder. Before her I didn’t worry about hostility so much as I worried about people blessing my heart and making sad eyes at me (I had having my heart blessed and getting sad eyes from people: after the first few thousand times, it gets old). Still, here I am in a new place with new people. These people aren’t big dessert eaters, which I like about them. Still, I’m feeling a little gun shy after my experience with Big Death’s Dixie.

Maybe I’ll wait a year this time around.

* ~ * ~ * ~ * ~ * ~ * ~ * # * ~ * ~ * ~ * ~ * ~ * ~ *

Date: 2010-02-24 10:47 pm (UTC)
From: [identity profile] drippedonpaper.livejournal.com
I understand this very well. I have Behcet's but I really try to never mention it. I am Maria (who happens to have Behcet's), I am not "A Behcet patient who happens to be named Maria"

I very much understand not telling people about a health condition right off the bat. It makes a lot of sense to let them know the true you first.

And yes, people who love sweet practically shove them on you and make you feel bad for not giving in. I have DEFINITELY experienced people doing this to me.

Date: 2010-02-24 10:51 pm (UTC)
From: [identity profile] neanahe.livejournal.com
The whole insisting that you eat something you have already said you don't want feels very much like being on a date with a boorish guy who won't keep his hands to himself. If makes me want to shout, "Listen, buster, what part of NO don't you understand?!" *sigh*

Date: 2010-02-25 03:28 am (UTC)
From: [identity profile] millysdaughter.livejournal.com
We were at a full table at a church dinner, when a new guy lifted his shirt and injected himself in the tummy, right there at the table. Now, if he had abs worth seeing, it might not have been so bad...but he would have been much more attractive had he kept his shirt on.

Date: 2010-02-25 04:09 am (UTC)
From: [identity profile] neanahe.livejournal.com
I'm a firm believer that if you are going to expose skin, you should excuse yourself and go somewhere private. Even abs worth looking at are often bruised if they get regular injections in them, and that's not nice to look at either. For the first 12 years or so I gave shots by the book: on exposed, sanitized skin. Than I got bored and started shooting through my clothes, and after 20 years I haven't looked back.

I don't usually make a show of dialing up a dose and shooting myself in front of people, but I was irate that day and was trying to make a statement: "Stop trying to force feed me dessert, damnit." Unfortunately, it seemed to be interpreted as: "Wow, she doesn't eat dessert. How on earth can she ever be one of us?"

Live and learn.

Date: 2010-02-25 04:41 am (UTC)
From: [identity profile] millysdaughter.livejournal.com
There were two other diabetics at the table, both of them older people that were horrified at the exposed skin at the dinner table.
Here in the midwest, diabetes is becoming more and more common. I am not sure if more people actually do HAVE it now, or if they are just getting better at diagnosing it these days.

Date: 2010-02-25 04:32 am (UTC)
From: [identity profile] magsmom.livejournal.com
wow. I don't know why this surprises me, but it does. Diabetes is a drag, but it does not or should not define anyone. And telling or not telling should be entirely up to the individual.

Don't you think it just a bit ironic tht the person who reacte dso strongly was diagnsoed a coupld of years later. maybe it was a fear of hers. Type 2 is much more liftstyle oriented than anything else, isn't it?

Date: 2010-02-25 04:14 pm (UTC)
From: [identity profile] neanahe.livejournal.com
Ironic and annoying. Type 2 is generally controlled by diet and drugs that make them more sensitive to the insulin their body makes, though a good number of Type 2s are put on insulin if diet and pills don't do the trick. Type 1s always require insulin therapy, since we don't make any at all.

Date: 2010-02-25 06:25 am (UTC)
From: [identity profile] basketcaselady.livejournal.com
You know you need to tell someone in case your numbers bottom out at work.

Date: 2010-02-25 04:09 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I test myself throughout the day and I can feel my own numbers dropping before I start to show any signs. In 33 years, I've been taken by surprise maybe 2 or 3 times, and even then I acted drunk but figured out what was going on before I passed out.

In due time, I'll clue them all in. In the meantime the odds are in my favor that I'll be okay for the next few months until I do so.

Date: 2010-02-25 10:37 am (UTC)
From: [identity profile] simplecity2htwn.livejournal.com
Flash back 12 years. I knew there was such a thing as diabetes, but I didn't know what it was. So, I go on my first lunch date with a very nice lady and at the end of the meal, she reaches in her purse, whips out a syringe proceeds to give herself a dose. I was floored, mainly because I knew so very little about the disease and its treatment.

You and your disease were a threat to Dixie's ability to get attention and sympathy from the staff. You're lucky you two worked in a quiet office. If you'd worked in an industrial facility, she probably would have pushed you into some piece of heavy machinery and Sweat Pea would be an orphan.

On top of that, she would have spent the next 5 years rehashing the details of the terrible "accident" to your replacement.

Date: 2010-02-25 04:07 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I have no doubt that you are right. For this reason, when we took the stairs I always made her walk in front of me and not behind.

Date: 2010-02-25 03:31 pm (UTC)
From: [identity profile] rottzilla069.livejournal.com
Please don't take this as picking on you, but I feel I have to play devil's advocate for a minute. Try and see it from their point of view. By not telling them up front and accepting the sweets (even though you may not have eaten all of them), you gave the appearance that you did indeed like them & could eat them. Not telling them is one thing, but I could see how Dixie and/or others might have thought that you had been dishonest with them about your disease by accepting their sweets. Also, I could see how sticking yourself in front of everyone like that at lunch would be a little on the dramatic side, and might have scared them a bit. Although they clearly do not know the meaning of the word no.

I honestly believe that people are much more accepting than you're willing to give them credit for. For example:

Our new library director has Celiac Disease (i.e. she can't have anything w/ gluten in it, which can be very difficult at times to avoid). But she was completely up-front about it and everyone here has been very accepting and we've all tried to accomodate the intolerance and bring in gluten-free things whenever we bring things in. It doesn't have to be a big deal. On the other hand, your work environment(s) were probably not as friendly/close-knit like we are. Unfortunately, where I work is very sweets-oriented too. I wish that would change, but what can I do?

Honestly though, if you're hiding it in an effort to get people to accept the "real you", than you're really just shooting yourself in the foot. Because it's a part of who you are, and hiding that is hiding the real you. If people can't accept that, then that's their problem and their loss. Are you really afraid that people won't like you if they know?

Lastly, I whole-heartedly agree with [livejournal.com profile] basketcaselady . At my previous job, we had a temp who is now a dear friend of mine and was diabetic. Luckily, she had told us about her condition when she came because one day she was found slumped over in her chair and had to be rushed to the hospital b/c she'd crashed. Having that information about her was vital. Note, we all loved her very much regardless.

Date: 2010-02-25 04:05 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I know my body well enough that I don't have to worry about "passing out." I test myself several times a day and any time that I am feeling a bit off. In 33 years, I've never passed out from a state of full consciousness (though I've failed to wake up if an episode happened in the middle of the night). It's never happened. Period. After 33 years, I'm really good at dealing with this. :)

In the case of my department at Big Death, I always declined the sweets and they never accepted my answer but instead insisted I have something even after I said no. I've never worked anywhere where people habitually insisted that I had to eat a piece of cake to be a team player. It was weird (not to mention pushy of them).

Besides that, I can eat sweets if I want. I can eat anything anyone else eats; it's a matter of adjusting my insulin to what I've consumed. I've just gone long watching my carb intake that a few bites is all I ever crave, and I have a "waste not want not" mindset that makes me hate throwing a whole piece of cake after I've taken only 2 bites. When I ask for a small piece, I'm not breaking any rules. However, when someone says, "Hell no, have a big piece instead!" they are breaking the rules of basic etiquette and it pisses me off.

Dixie was the only person I've met who was hostile about learning of my diabetes. Most other people are surprised because I "seem so normal" (honest to God, that's what they've told me). Some of them get protective and self-righteous about what I eat because they know a little but not a lot about the disease. When I'm getting used to a new work environment, I have enough on my mind that becoming an educational ambassador for diabetes is not a job I want to take on at that time. Besides, I am a very private person: my medical history is my business and no one else's. If I had endometriosis, it would be my business. If I had a history of cancer? My business and my business alone. If it doesn't effect my job (and this doesn't), its a private matter (just like my sex life is).

I don't hide my diabetes; I just don't advertise it, either. Once they know me and I know they see me as a person, I let them know I have a disease. Otherwise, they will focus on the disease and not bother to get the person behind it. Not everyone, but enough people for it to be a pain in the ass. Trust me on this. Every lesson I've learned about this, I've learned the hard way. :)

Date: 2010-02-25 05:02 pm (UTC)
From: [identity profile] rottzilla069.livejournal.com
I'm glad that you've learned to deal with it. I'm sure it can be hard to adjust and still feel like you're a "normal" person (whatever that really means).

I'm not defending Dixie at all - just trying to possibly see where she might have been coming from. I think we already established that she's a vile person, though. So I'm totally on your side, I promise.

Trust me, I really do understand the stuffing sweets down your throat scenario. I don't think it's quite as bad here, but the mentality definitely exists here. There's a couple of us that are on strict diets & refuse to eat them, but they always get the evil eye too. The whole situation reminds me of that episode of Seinfeld when Elaine stages a rebellion against sweets. Do you know that one?

Date: 2010-02-26 02:31 pm (UTC)
From: [identity profile] neanahe.livejournal.com
Alas, I'm one of about 10 people in the US who did not regularly watch Seinfeld, and one of only 7 who did not watch Friends. This makes me a cultural oddity.

I'll have to watch the clip when I get home tonight. My computer at work has no speakers. :(

Date: 2010-02-25 04:23 pm (UTC)
From: [identity profile] jenelycam.livejournal.com
I do find it extremely ironic that Dixie got Type 2 diabetes. I guess I've been around diabetes my whole life. My grandma had it ever since I can remember and I remember her giving herself her insulin shots daily. (we went to her house everyday after school) My uncle had it. My other grandma had it, though I didn't know her. My cousin has it. My mom is borderline. Yeah. And I guess I don't let it define the person for me. It happens. My cousin's little boy was diagnosed with it a couple of years ago...he's the same age as Camie. Poor kid. I feel for him, because his is so hard to regulate. But it doesn't drag him down. He's very active.

*HUGS* It's sad that people let illness define the person, instead of personality and what's inside define the person.

I hope your new co-workers are much more accepting when you do decide to let them know.

Date: 2010-02-26 02:33 pm (UTC)
From: [identity profile] neanahe.livejournal.com
She'd had gestational diabetes with all 3 of her kids (and didn't take care of well, apparently: they were all 11 & 12 pounds at birth), so she knew she was at risk. Maybe I represented something she dreaded. Or maybe she was just a bitch. :P

Date: 2010-02-26 02:45 pm (UTC)
From: [identity profile] jenelycam.livejournal.com
I did know that having gestational diabetes increases your risk of getting type 2 later in life. I'm so glad I never had it with the girls. (Those kids were HUGE!!) My friend Charma had it with her 2nd child and he was a big baby too...

I suspect it might've been the bitch factor. :P

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