ninanevermore: (Default)
[personal profile] ninanevermore
.
.
.

I learned a long time ago that with most men, fear and anger look identical. In order to tell if the man is really angry or just terrified, you have to look at the context of his reaction to see what emotion is behind it. Some women never figure this one out, but I am in a unique position in that I have a medical condition that from time to time scares the bejeezus out of the men in my life. Before I was out of my teens, I knew that a man screaming, "For crying out loud, be careful!" is not angry at me for not being careful so much as he is afraid that I'm going to keel over on him and he's going to be helpless to stop it.

It's handy to know this. Instead of getting angry at them for getting angry, I know to reasure them until they calm down.

When I was small, my mother dealt with the situations where my blood sugar dropped too low. My father was confident in her ability to handle anything, and didn't worry too much. By the time she died when I was 15, I was pretty much in control of my own care, but I rarely needed special attention. I told him when he needed to take me to the doctor, or when I needed a prescription filled, he paid for it, and his responsibility ended there. At that point, I was only taking a couple of insulin shots a day, and low blood sugars were rare (in large part because that treatment was so ineffective that my sugars ran a bit higher than normal, and thus is not used for Type 1 diabetes any more).

In college, when I switched to a more aggressive insulin regime that kept my blood glucose level more within the range of a normal person's, I also tended to drop below normal from time to time. To me, this is no big deal. I eat, and the situation corrects itself. I remember one occasion when I was in the car with my father and my boyfriend at the time and I started to feel a bit low. I checked my purse and found I was out of candy, so I asked my father to pull over to a drive through. I was calm, and not yet to the point where I was crying or shaking or sweating. My father, however, got snappish with me: he wanted to know exactly what I wanted him to order and was I sure it was going to be enough?

"Why is he pissed at me? I only asked for something to eat!" I whispered to my boyfriend.

"Your dad is scared, that's all," he told me.

I found this very curious. "I'm going to be okay, Dad," I told my father, "this will do the trick, I promise."

His breathing returned to normal and the cords in his neck relaxed. "Okay," he said, and that was the end of it.

Jeff has seen things that would have sent my father over the edge. Jeff has seen me with a glucose level so low I could not stand or speak coherently. Worse, Jeff has been awakened by me going into convulsions in the bed next to him because my glucose had dropped so low that it triggered a seizure. I have no memories of the times when this has happened, beyond a vague recollection of my husband putting a straw between my lips and barking, "Drink!" I can be otherwise completely unresponsive, but I always drink my orange juice when given the command.

The next day, I'm always a little tired but none the worse for wear. Jeff, on the other hand, looks like he's been through the ringer and it takes him a few days to get over it. It doesn't happen too often, but we've been together 20 years and as far as he is concerned, once in a blue moon is far too many. When I was pregnant, for example, my insulin requirements dropped rather dramatically early on, to about half of what I'd needed previously. I had some scary episodes a few nights in a row before I got the dose down to a level where I didn't "crash" every night at 2 AM.

This last weekend, I started taking a new hormone, a synthetic version of the hormone amylin, which my body used to make along with insulin back when I had functioning beta cells in my pancreas. One of the effects of taking this hormone is that my need for the fast-acting insulin I take with each meal is now cut in half. I was explaining how this works to my husband. One of the things amylin does is slow down or stop the liver from releasing the hormone glucagon, which tells the liver to release the steady stream of glucose it does to keep us functioning between meals..

"I don't know if I like this," he said, "Does this mean you're going to crash more in the middle of the night? And if you do, and your liver is not releasing glucagon, does that mean it's going to be harder to pull you out of them?" He sounded irate, which is how I knew he was scared to death.

"No," I told him, "I'm going to monitor myself very carefully, and it shouldn't cause me to crash in the night."

"Do I need to take a video of you having a blood sugar crash in your sleep so you can see what I have to see?"

"That won't be necessary. I'm pretty sure it looks a lot like a grand mal seizure."

"That's exactly what it looks like. And on the nights I'm not there, there's no one who can help you." When I was pregnant he worked second shift at the airport and came home around midnight, which was how he ended up coming to my rescue so often. Now that he's back on 3rd shift, I am alone with our 4-year-old son on the nights he works. I don't take any shot that is big enough to kill me, according to my doctor. If no one is there and I have a seizure it will cause my brain to release adrenalin (the "fight or flight" hormone), which will cause my liver to release glucose, which should pull me back from the brink after I'm done having convulsions. It all works out, just not as fast as Jeff holding a juice box to my mouth and commanding me to drink.

"I'll start eating a snack before bed, if you are really worried."

"Okay," he said, "Do that." He sounded doubtful, but his breathing seemed to return to normal. I couldn't see him since we were talking on the phone, but I'm willing to bet the cords in his neck relaxed, at least a little.

I woke with a low blood sugar this morning, but not so low that I didn't wake up. Still, the first thing Jeff did when I staggered into the kitchen was pour me a glass of juice and say, "Drink!"

He's going to be impossible to deal with for the rest of the week, I just know it.


* ~ * ~ * ~ * ~ * ~ * ~ * # * ~ * ~ * ~ * ~ * ~ * ~ *

Date: 2009-07-08 07:51 pm (UTC)
From: [identity profile] mersipan.livejournal.com
What a great entry!

I hope you're feeling better soon and remain seizure-free this week.

Date: 2009-07-08 08:22 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I plan to, but Jeff is going to be a nervous wreck for awhile nevertheless.

Date: 2009-07-08 09:30 pm (UTC)
From: [identity profile] mersipan.livejournal.com
I'm sure.

And somehow I never made the connection between fear looking like anger in guys...a lot more makes sense now!

Date: 2009-07-08 09:42 pm (UTC)
From: [identity profile] neanahe.livejournal.com
Other guys seems to be able to spot it pretty easy, but most of the time women can't. At least, I can't.

Even I have to remind myself what's really going on with him because my first instinct is to shout back, but that just gets them more riled up. Apparently that adrenalin rush that comes with fear has a different effect when it's also mixed up with testosterone: men tend to go into "fight" mode, as opposed to "flight."

Incidentally, this is the most hormone ridden post I think I've ever written.
(deleted comment)

Date: 2009-07-08 08:20 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I'm taking Symlin, which comes in a pen just like Humalog does. I'm taking it twice a day, about 30 minutes before I take my breakfast and dinner shots. It causes nausea at first (and how, but it gets a little lighter each day), so they start you off on a low dose for the first week, and then increase it after the queasiness goes away.

If you do a search for Symlin, you'll get the patient education pages for Amylin Pharmaceuticals here: https://www.symlin.com/Default.aspx

That tells you how to use it, but to find out why it's so cool it's better to check out the page for healthcare professionals here: http://www.themissinghormone.com/

The gist is that in a non-diabetic, the body releases amylin along with insulin to tell the liver to stop putting out glucagon for a while so they don't get that spike in blood sugar after a meal like we diabetics are prone to do.

My complaint to my doctor was that in order to lose weight I have to cut my daily calories to about 500 a day - which I can do for about half a day before I decide: "Screw it, I'm starving." Symlin just got FDA approval, so we are trying to see if it will normalize my metabolism. Not only do I need less insulin, my brain is convinced I need less food. I get that "full" feeling pretty fast, and don't want to eat. Ask me in a month if I'm down a jean size or not...

Read up on it. It's really interesting. :)

Date: 2009-07-08 08:29 pm (UTC)
From: [identity profile] basketcaselady.livejournal.com
That explains why I think my husband is angry with me when I go low. My son keeps telling me that his dad worries. And I keep thinking, then why is he angry? Thanks.

Is the amylin like symlin? I'm type 2, using insulin. I also used symlin for about 6 mos. It worked great the first 3 mos then slowly petered out. Lucky for me, my dr was deployed to Afghanistan, so her nurse was calling me once a week to check on me and get my numbers. He recognized that I was heading for a crisis long before I did. Stubborn me didn't want to give up on the symlin. But by the time my fast acting was back to pre-symlin levels, I had to realize that the symlin was useless to me :\

Date: 2009-07-08 08:40 pm (UTC)
From: [identity profile] neanahe.livejournal.com
Your son, being male, knows what male fear looks like. If they'd just fret the way we do, it would be a lot clearer to us how to respond.

Symlin is the brand name for synthetic amylin, just like Humalog is a brand name for recombinant DNA human insulin.

As a T2, your body still makes some amylin. Since I'm T1, I don't at all. We'll see if the effect peters out on me, as well. I'm hoping not. I'm looking forward to dropping a dress size or 2. :^P

Date: 2009-07-08 09:44 pm (UTC)
From: [identity profile] skipperja.livejournal.com
Very perceptive! And we aren't even self-aware enough to explain how we feel.

I hope you can keep all that medicine and sugar balanced out.

Date: 2009-07-08 09:53 pm (UTC)
From: [identity profile] neanahe.livejournal.com
It took me awhile to figure this out, but experience eventually makes you wise.

I will. Compared to the fluctuations I had during my pregnancy, this new shot I'm taking is a piece of cake and far more predictable on a day-to-day basis. :)

Date: 2009-07-09 12:52 pm (UTC)
From: [identity profile] jenelycam.livejournal.com
It's good that you know they react that way because of fear and not anger, and that you stay calm in those situations to calm them. I guess I never consciously realized that about men, but thinking back, it all makes sense.

*HUGS*

Date: 2009-07-10 01:51 am (UTC)
From: [identity profile] neanahe.livejournal.com
I'm not asking that they get all shake and crying like we do. I think women could understand it if they would just say, "You scared me, damnit!" The "damnit" would make more masculine so they wouldn't have to feel so woosey, meaning there's no excuse for them not to do this for us so we can get a clue.

Date: 2009-07-09 07:35 pm (UTC)
From: [identity profile] simplecity2htwn.livejournal.com
In the male world terror gains us little except contempt from other men. Intermingling anger with fear is probably a survival mechanism.

Your husband gets a gold star for the awaken-by-convulsions episode. I'm not sure how many times I could do that.

Date: 2009-07-10 01:57 am (UTC)
From: [identity profile] neanahe.livejournal.com
It's not like it happens all the time. The last it happened was 2004, when I was pregnant, and I went through a period in 1997 where it happened over a few weeks as I was adjusting my meds. He still won't forget or let me live it down.

Apparently, I'm not allowed to screw up like this more than every 7 years - that seems to be his limit for tolerance. Out of respect, I'll try keep things on an even keel until sometime in 2011. He should be fine by then.

Think big!!!

Date: 2009-07-10 02:17 am (UTC)
From: [identity profile] simplecity2htwn.livejournal.com
You could earn "great wife" points by stretching it out to 2012 or 2013. Or, you could skip a whole cycle and not hit him up until 2015.

Re: Think big!!!

Date: 2009-07-10 02:01 pm (UTC)
From: [identity profile] neanahe.livejournal.com
My ultimate goal if for it never to happen. It means I've screwed up and miscalculated, big time. A more typical 2 AM crash means me waking up drenched in cold sweat and staggering to the kitchen to get some orange juice (whether Jeff is there to order me to drink it or not). A crash so serious that I don't wake up is not a small matter.

To me, it's mostly annoying. To Jeff, even the small crashes (where I come to on my own) remind him of the possibility of a big one and put him on edge. I don't need to see what one looks like: I've seen his face the next day, and it's pretty bad.

Re: Think big!!!

Date: 2009-07-10 02:02 pm (UTC)
From: [identity profile] neanahe.livejournal.com
....not to mention, I have a child in the house now. Having that happen where he could see it is a big motivation to keep an eye on it.

Re: Think big!!!

Date: 2009-07-10 02:20 pm (UTC)
From: [identity profile] simplecity2htwn.livejournal.com
As I was thinking about this, it reminded me that almost everytime I got hurt, injured, or ill, my dad would appear to be pissed off. I guess it truly is a male reaction.

Re: Think big!!!

Date: 2009-07-10 02:24 pm (UTC)
From: [identity profile] neanahe.livejournal.com
Congratulations seeing your dad so pissed off when you got hurt; it means he loved you dearly. :)

Profile

ninanevermore: (Default)
ninanevermore

April 2024

S M T W T F S
 12345 6
78910111213
14151617181920
21222324252627
282930    

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jan. 28th, 2026 05:21 am
Powered by Dreamwidth Studios