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Some children are born with a mark for tragedy that no one but Fate can see. They come into the world looking like every other child; healthy, normal, sweet-smelling and lovable. We can't recognize the mark, because it would keep us from loving these children like we should. We would know that to love this child will mean our hearts will be broken, and many of us would turn our backs on them. But the mark, unseen and unrecognized, has the opposite effect on us: we seem to love them more.

"Some people have hobbies that they dedicate their lives to," said my mother's friend Cecil Murphy, "mine is loving Rodger."

Rodger was his brain-injured grandson, born healthy and normal some 8 years before his grandfather was quoted saying this in a write up in one of the Houston newspapers. In the mid 1970's, years before anyone announced that infants should never ride in the front seat of a car, Rodger was riding shotgun next to his mother when the car was involved in a head-on collision. His mother died that day. His brother and three sisters in the back seat all suffered from broken limbs. Rodger sustained sever brain injuries.

Cecil and Nell Murphy lived in my neighborhood when I was growing up, and my mother was part of a team of volunteers who visited their home each week and helped with Rodger's "patterning," a form of physical-rehabilitation that involved holding Rodger's body and physically putting him through the movements of crawling, walking, and the like. He never did learn to do all these things but I think he did benefit from all the touching and the hands-on attention he received from my mother and the other volunteers. Friendships formed in that little room his grandfather built adjacent to the garage just for Rodger's rehabilitation. During the summers I accompanied my mother on her twice-weekly shifts and I played with his sisters while the grownups gossiped, joked and traded stories as they put little Rodger through the motions. Rodger remained immobile and unable to speak, but he was a magnet for goodwill and people filled with it gathered around him.

My mother continued to work with Rodger up until her cancer made it impossible. She told the Murphys that she needed to take some time off from it until she felt better, and never went back. I remember Nell Murphy bringing by a chicken and rice casserole when my mother was in the hospital, and Cecil barbequed a whole beef brisket that he brought by for the post-funeral meal. I was very irate when the mourners ate every bit of the brisket and left us with three chicken and rice casseroles in the refrigerator (we were all burned out on Chicken and rice – the preferred drop-by dish for your local family in need – by that point).

I last saw Rodger when I was in college, some 5 or 6 years after my mother died. I was walking through the neighborhood when I noticed Cecil and Nell in their yard and they invited me inside to visit. Rodger, though by then a teenager, looked the same as always. He never grew very big, and his skin was still as soft and downy as an infants.

"This is Nina, Rodger. You remember Nina?" his grandfather crooned. Rodger's face showed no signs of recognition.

"She's Ruby's little girl. You remember Ruby. Where's Ruby? Where's Ruby? Is Ruby here?" Rodgers face lit up in a smile: a huge beatific, angelic smile that I will never forget. Time had no meaning for Rodger Murphy. Ruby, my mother, had not been a part of his life for 6 years, but that smile make it feel like she was about to walk through the door, and it would have been a miracle for everyone except Rodger if she had. She was part of his world, and his world never changed.

I told the Murphys I had to be getting home. I really needed to go somewhere and cry, and it was all I could do to maintain my composure as we smiled and made our goodbyes.

Rodger Murphy died a year or so later, at the age of 18. Cecil followed him a couple of years later, and eventually Nell passed away as well. Rodger was born normal and healthy, the kind of kid people pick up and tell him he can be anything he wants to be when he grows up. Then tragedy made his the kind of kid that people whisper about, "It's such a shame. You wonder what he could have been…." But his life had more impact that a lot of not-so-tragic lives I've seen. He was a magnet for goodwill, and he pulled people full of goodwill toward him and they laid their hands on him to try to heal him as best they could. He never became a normal, non-brain injured child, but that does not mean there weren't miracles taking place around him and because of him. Friendships grew and blossomed as people of goodwill came together for a common cause. Little miracles here and there, the kind people forget to notice. And that smile of his when he heard my mother's name: the smile of an angel and a miracle worker if I've ever seen one.



* ~ * ~ * ~ * ~ * ~ * ~ * # * ~ * ~ * ~ * ~ * ~ * ~ *

Date: 2010-01-13 09:39 pm (UTC)
From: [identity profile] noblwish.livejournal.com
I remember Rodger and his grandparents. They were the reason we sought help for Clay.

Date: 2010-01-13 09:55 pm (UTC)
From: [identity profile] magsmom.livejournal.com
As the mother of a "kind of kid people whisper about" I find this very sweet.

That patterning was a huge thing in the 70s. Maybe it didn't do what they thought it would, but it certainly helped keep Rodger and others like him, part of their world and family.

Date: 2010-01-13 10:26 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I remember my mother getting your parents and the Murphys together when y'all were in town. Clay didn't care for Rodger, I think because Rodger was cognitively impaired while Clay really wasn't. I think he didn't like to be compared to "that kid." :)

Date: 2010-01-13 10:38 pm (UTC)
From: [identity profile] neanahe.livejournal.com
I think it had a very good effect, just not the dramatic one they were hoping for. Rodger's limbs were supple and his hands weren't stuck in that posturing position like those of my brain-injured cousin (who was not patterned) were. I think it was good for his circulation and general physical well-being, since the human body is not meant to sit still and never move. Also, doctors expected Rodger to be a "vegetable" after the accident but he definitely wasn't one. He knew and recognized people and had definite likes and dislikes. I think the intense interaction was very good for his mental development.

I suspect patterning was considered a failed experiment because the kids who got it didn't exactly get "well," but I would argue that in most cases the children who underwent it were, in fact, better off than they would have been without it.

Date: 2010-01-13 10:46 pm (UTC)
From: [identity profile] sidneymintz.livejournal.com
Another heartfelt and inspiring story. I have been snapping at B today and now I'm going to give him a squeeze. BTW, my sole surviving grandparent (my mom's mom) is named Ruby, but for some reason she goes by Dorny.

Date: 2010-01-13 11:26 pm (UTC)
From: [identity profile] magsmom.livejournal.com
I'm not sure it's considered failed as much as it is simply out of fahion or that things have evolved. People still get stretched and get range of motion, certainly. Instead of using rote movements to trigger the brian, many therapists try to target other areas of the brain to trigger movement. For example - they use motivation and toys to get kids to "want" to move. There is also a lot more bracing now than there was then, which may be doing the same thing as patterning.

I didn't mention this before, but I love Grandpa saying my hobby is to love Rodger.

Date: 2010-01-14 03:30 am (UTC)
From: [identity profile] poetlady.livejournal.com
People whisper about my son, but for very different reasons. Still...in spite of his challenges, it meant the world to me tonight when a lady said, "I hope he's in my class" and she actually meant it. Most people are kind but...often they are more.."enduring" than actually, genuinely wanting to be around him.

That was SOOO sweet that he remembered your mom and smiled like that. What a special, precious, amazing miracle.

I really, really loved this entry of yours:)

Date: 2010-01-14 04:39 am (UTC)
From: [identity profile] neanahe.livejournal.com
The newspaper liked that, too. As I recall, they used it for the headline on the human-interest piece they wrote about the Murphys.

Date: 2010-01-14 05:36 am (UTC)
From: [identity profile] millysdaughter.livejournal.com
**hugs**

This is a beautiful entry!

Date: 2010-01-14 12:54 pm (UTC)
From: [identity profile] jenelycam.livejournal.com
*HUGS* What a sad and touching story. It's wonderful that your mom was such an angel to HIM!

Date: 2010-01-15 03:40 am (UTC)
From: [identity profile] neanahe.livejournal.com
Ruby is an old name and not that as common today as it once was. I was born late in my mother's life, so she was probably from the same generation as your grandmother. :)

Date: 2010-01-15 04:29 am (UTC)
From: [identity profile] neanahe.livejournal.com
That smile took my breath away. I never quite realized how aware he was of the people around him until that moment, or how his concept of time might be very different from everyone else's. For all he knew, she was still coming back whenever her next day to work with him came around.

I hope everything with you son works out and you find the answers that help him function in the world. My own son is doing well now, but I'm nervous about what might happen when he starts school next year. {hugs}

Date: 2010-01-15 04:30 am (UTC)
From: [identity profile] neanahe.livejournal.com
Thank you. They were beautiful, sweet people, and I am honored that I got to know them. :)

Date: 2010-01-15 04:32 am (UTC)
From: [identity profile] neanahe.livejournal.com
He was surrounded by angels all his life; they kind of flocked to him. He sort of brought out the angel in everyday people like my mother, and his grandparents were two of the sweetest, most amazing people I have ever met. :)

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